PI: Dr. Kirst Fiest

Co-Applicants: Christian Farrier, Nadine Foster, Shelly Kupsch, Dr. Daniel Niven,
Peter Oxland, Dr. Jeanna Parsons Leigh, Bonnie Sept, Dr. Thomas Stelfox, Dr. Sharon

Title: Co-Designing a Patient and Family Caregiver-Oriented Transition in Care Bundle
Competition: Team Grant (Ranked #1!)

Total Funding Award: $1,107,400 ($239,501 for 4 years)

Funding Term: 2019-2023

Patients in the intensive care unit (ICU) are very sick. When a patient leaves the ICU
they may have a change in their health that is new to them and their family members,
such as new medical problems or new medications. When a patient leaves an ICU they
can move to another part of the hospital or go home. Moving from the ICU to other parts
of the hospital can be confusing and stressful for a patient and family because there will
be new doctors and nurses and it will look and work differently than the ICU. The only
people who remain the same when a patient moves from the ICU are the patient and
their family. It makes sense that patients and their family should be at the center of their
care as they move from across the healthcare system. The goal of this study is to build
a tool that puts the patient and their family at the center and in control of their care. The
tool will help family caregivers be involved in the patient's care while they are in the ICU.
This tool will teach patients and families about the care a patient got in the ICU, the care
the patient needs after the ICU, and medical problems the patient may still have. This
tool will encourage patients and their families to reach out to other patients and families
for peer support. This tool will improve communication between patients, families,
doctors and nurses. These actions will put the patient and their family in control of their
care. Once built, this tool will make the care that a patient receives better and more
adapted to that patient's needs. The tool will also help patients have better recoveries
from their sickness. This tool will be made with and used by patients, families, doctors
and nurses. This will make sure the tool is easy to understand and useful for all patients
and their families. When patients and families have more knowledge, are involved in the
patient's care and can communicate with patients, families, nurses and caregivers, they
are put in in control of their care.